Why Don’t/Won’t THEY Listen To Me?

I have been writing, the past few months, about my experience with ignoring my diabetes and how ignoring my diabetes diagnoses caused me to have my right leg amputated below the knee. During the past few weeks that I’ve been writing this account of my hard headed dumbfuckery, which was ignoring the management of this disease, I have often talked about the issues I have with the prosthetic system. 

To recap: I started off with a prosthetic company that would not listen to me when I told them I needed a smaller socket……because the socket I had at that time was too big. The socket is the black carbon fiber bucket looking thing shown below….

03

This socket was huge by the time I had been wearing it for 6 weeks. The fit has to be correct or wearing an ill fitting socket will cause skin issues such as blisters, sores or skin irritation to the limb. I visited my former prosthetists twice to complain the socket was too big/ill fitting and requested a new socket.

He didn’t listen or pay attention.
I immediately found a new prosthetic company and a new prosthetists. Below is the newest socket and it also happens to be a new system, a suction system. The old system was a “pin” system.

This is the new socket…….

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You can see the size difference between the two sockets and if you can see that difference, you may wonder why the old prosthetic professional couldn’t see that difference….and make me a new socket that fit properly.

There is a lot of misinformation in this medical profession of prosthetic legs. I am not that familiar with the issues concerning other limbs or fingers but I’m guessing there are some issues with those amputations as well. It seems people who are responsible for the prosthetics used to assist us amputees in walking have a hard time listening to us who are doing the walking using their prosthetics.

IF you do not use a prosthetic daily, but are responsible for making and showing us how to use a prosthetic for the first time, might I suggest when a new amputee comes to you with ideas on how to make THEIR prosthetic work better FOR THEM,….YOU LISTEN.

I happen to be the one using the prosthetic, everyday, so when I tell you something is uncomfortable and then tell you exactly HOW to fix that problem for me, so MY prosthetic fits MY limb better…..LISTEN.

YES, I comprehend you’re the professional whose been doing this prosthetic thing far longer than I’ve been an amputee……but here’s where the rubber meets the road…….. I AM USING THE VERY PROSTHETIC YOU ARE NOT USING, HAVE NEVER WORN, DO NOT KNOW FIRST HAND HOW IT FEELS OR WORKS FOR MY LIMB.

Every amputee is different. We heal different. We progress different. We need different things done to get us where we need to be in order to live a somewhat normal life, which includes walking. The endgame, the goal is to walk. As normally as possible, using the BEST prosthetic system that gets us mobile. Mobility is the reason any amputee uses a prosthetic.

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This foot you see above, WITHOUT AN ANKLE, is NOT how we were born nor was it how we learned to walk. DO NOT tell me I can not start out with an ankle joint on my prosthetic foot because I wouldn’t know how to control an ankle socket/joint….when I was born with an ankle socket/joint and learned to take my first steps, 59 years ago, using that ankle socket/joint.

That insults my intelligence and my ability to get back to being normal by walking normally.

If I tell you MY prosthetic needs to be adjusted or modified to fit my limb or enhance my walking and mobility needs, PAY ATTENTION, THEN DO WHAT I ASK/SUGGEST.

Thats all for now…..we’ll see how this amputation thing goes……

Just in case I’ve not made myself clear in past post….DO NOT IGNORE YOUR DIABETES……OR YOU WILL END UP EXACTLY LIKE ME.

diabetesstrong

 

!!!!!!!!!!!!!!!!!!!!!!!!!000IGNORING DIABETES

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